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Showing posts from July, 2022

The past week, test & scan Results, preparing for what is next..

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It has been almost a week since the last update here. She has had a difficult time, and has shown more signs of decline. There has been high fever every night, very low energy, nausea, abdominal pain, a lot of sleep and no appetite. She took all of the antibiotics that she was prescribed but it did not really change anything. The nausea med (Zofran) has definitely helped, and she has not gotten sick anymore since taking it. We are very thankful for that. We are staying on an 8hr interval with it to stay that way. Since the last post she has also began to have some pretty intense pain in her abdomen. We were no longer able to control it with the natural remedies we have been using, that have worked for the previous month or two. We got a script for some pain medicine. She is taking it on the same 8hr interval as the Zofran and it is managing the pain very well. So pain & nausea are under control for now. She has slept most of the day every day, and has migrated to the bed (instead o

Update on health, well-being, clinical trial start date, and other things

The past few weeks have been a little different. She has really been starting to feel the pressure of the tumors in her liver pressing on things. It causes constant discomfort. She said it is not painful, just very uncomfortable all the time. She can only eat maybe 25% of what was a normal amount for her originally because she feels full all of the time. With that said, she has lost a few pounds (maybe 5 or 6 over the past month) but it is nothing drastic. She tries to eat several really small meals throughout the day. Her energy levels have been pretty low as well. Maybe a handful of small walks over the past month (but then again, it has been really hot outside too). She does whatever in and around the house, and she has got her garden going pretty good. She has been bringing in a "little haul" of fresh vegetables every day. A lot of couch time with mongie. Late last week, she started having a little more fatigue and some sporadic nausea started. The pressure in her abdomen

AMG199 Clinical Trial - Updated Start Date (again)

We got a call from the Research Nurse over the weekend. Amgen is moving the start date to Monday July 25th . No complaints there, because at least it got moved in the right direction this time. That is the new plan. Just wanted to share. Thanks